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Connecting for Health (public-private collab):electronic data stream scenarios for drug prescription transactions

News from CDT's Policy 14.9 June 24, 2008, Privacy and Security Principles for Health Information Technology (1). CDT joined prominent health care providers, Internet companies, insurers, and other consumer advocates in endorsing a set of practices for new Internet services that allow individuals to access and maintain their personal health information. The framework, developed in a collaborative process organized by the Markle Foundation, recommends a detailed and comprehensive set of practices that can help protect the privacy and security of Personal Health Records (PHRs) and other services.
Of interest to Supra biotech readers: Consumer Technology 1 ('CT1') under 'Technology Overview' -this document provides scenarios designed to illustrate electronic data streams for the most common transaction in health care: a drug prescription.

The first scenario describes a common and simplified set of transactions stemming from a small clinical practice. The second scenario adds sophistication and complexity, depicting transactions that are less common today (although they may become more common in the emerging electronic environment).(2)

Connecting to Health accepts that much of our valuable personal health data is stored in and managed by numerous entities. The next key challenge is to establish the rules and techniques that establish trust among participants over a 'network of networks'. Policy rules will be needed in a number of areas, including patient consent, secondary use, and data management.

Identity has quickly emerged as a primary problem in network access...our desire to stimulate national progress in addressing this particular obstacle to consumer's access to networked use of personal health records....we hope that this paper contributes to a growing consensus that the path forward on consumer authentication requires careful thinking, new research, and innovative approaches.(3)

Connecting for Health is a public-private collaborative with representatives from more than 100 organizations across the spectrum of health care stakeholders. Its purpose is to catalyze the widespread changes necessary to realize the full benefits of health information technology (HIT), while protecting patient privacy and the security of personal health information.(4)

This work was originally published as part of a compendium called The Connecting for Health Common Framework for Networked Personal Health Information and is made available subject to the terms of a license (License) which may be viewed in its entirety at: http://www.connectingforhealth.org/license.html. You may make copies of this work; however, by copying or exercising any other rights to the work, you accept and agree to be bound by the terms of the License. All copies of this work must reproduce this copyright information and notice.

see below for more on Connecting for Health and CDT

On Connecting for Health:

Process:All Connecting for Health collaborative meetings begin with the following statement:
'Our most basic agenda is to improve health and the health care system for patients and consumers through connectivity and information sharing.'
Governance:Connecting for Health is led and operated by the Markle Foundation with additional financial support from the Robert Wood Johnson Foundation. A Steering Group comprised of more than 70 leaders from all major health stakeholders provides ongoing direction and oversight. The Steering Group was established in 2002, and although new members have been added over the last five years, many of the original members still play an active leadership role.
With each phase of work, however, the collaborative convenes new experts from across the health care spectrum into new working groups. Typically, working groups are constituted to tackle some specific aspect of the policy or technical requirements for private and secure health information exchange.

'CDT' reminder:

Center for Democracy and Technology works to promote democratic values and constitutional liberties in the digital age. With expertise in law, technology, and policy, CDT seeks practical solutions to enhance free expression and privacy in global communications technologies. CDT is dedicated to building consensus among all parties interested in the future of the Internet and other new communications media.

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