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Advancing research and care:Genetic diseases

From recent NYS DOH Health News (1): NYS DOH is the primary sponsor of the upcoming conference entitled :
Genetic Diseases of Children: Advancing Research and Care.
Sheraton Towers New York, 811 7th Ave. Manhatten
March 8-9, 2011
Excerpted from the news: Parents of and advocates for children with genetic diseases will meet with researchers, clinicians, and government and industry leaders at a first-of-its-kind national conference to advance research and care. State Health Commissioner Nirav R. Shah, M.D., M.P.H stated that

The goal of this conference is to develop recommendations for establishing a comprehensive, state-based model that will effectively facilitate early diagnosis through newborn screening, improve access and quality of care, optimize coordination of provider services, and foster high-impact clinical research to expedite improved medical treatments.

Conference sessions include:
-Diagnosis, research and care for rare diseases/conference overview
-Therapeutic advances/cellular approaches
-NIH and FDA initiatives for new therapies
-Importance of family support programs/social networks
-The road ahead.
DOH is working with the NIH's Office of Rare Diseases Research and its Office of Dietary Supplements, the National Genetic Alliance, the National Center for Research Resources, the National Organization for Rare Disorders and the Jeffrey Modell Foundation.
(1) http://www.health.state.ny.us/press/releases/2011/2011-02-25_genetic_diseases_children_advancing_research.htm
For more info. about the conference, see www.wadsworth.org/events/

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